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Staying Informed About Treatment
The bottom line in enjoying life with HIV in as healthy fashion as possible
is that the infected person needs to stay informed about options including
but not limited to medical treatment.
The
person with HIV / AIDS, whether in New York, San Francisco or Guam, needs
to be able to discuss treatment options with his or her physician, needs
to know when to take medications, proper nutrition, options for financing
the expensive treatment drugs and generally how to stay as - healthy - as
- possible.
An
HIV infected person on Guam needs to know when to inquire about new medications
coming to market and needs to know when to inquire about new medications
coming to market and needs to know which side effects are to be expected
with which medications, what to avoid when taking certain medication, whether
to take medication before or after meals and when to see a doctor, etc.
Special
opportunistic infections require special treatment. For HIV infected women
who are of child bearing age, there are special concerns. Changes in recommended
dosages of medications, adding or deleting medications are important developments
that people with HIV need to keep informed. Although the list of what HIV
infected people need to know is endless, there several solutions to keeping
informed.
Arrow
recommends that every person infected with HIV or AIDS subscribe to at least
one national magazine for people with HIV.
There
are a variety of magazines including POZ, which is a slick publication with
lots of advertising dollars to back up the production. They charge $19.94
for a year's subscription, but in the past it has been free to people who
identify themselves as HIV positive. You may check out POZ at 1279 Old Chelsea
Station, new York City, NY 10113. Their telephone is (212) 242 - 1900
Highly
recommended is a Chicago publication which is printed bimonthly and called
Positively Aware. It is a straightforward, easy to read publication covering
in detail important topics for those infected. In the July / August 1996
issue they provided a chart with advice about taking a variety of commonly
prescribed HIV / AIDS related medications and in the November / December
1995 issue provided a two page chart with telephone numbers for patient
assistance from drug companies for HIV / AIDS related medications. In Aware
devoted two pages to a chart identifying potential drug interactions.
In
other issues Positively Aware has explained about protease inhibitors, discussed
when to apply for disability, how to avoid viral hepatitis, what viral load
means, discussed coping with HIV / AIDS nutritional needs, and oral care.
In addition to easy to understand articles, it has a section called News
Briefs which highlights briefly what's new.
This
is a no nonsense publication with limited advertising addressing real needs
of people with HIV / AIDS. Positively Aware costs $15 for six bimonthly
issues per year. To subscribe, send your name and address with the check
to Positively Aware, 1258 W. Belmont Avenue, Chicago, IL 60657 - 3292. It
is mailed in a plain, sealed envelope.
There
are other publications too such as AIDS Treatment News, being Alive, Body
Positive and the NAPWA Link about which we have some information.
One
last note, the National Association of people with AIDS is the mother of
all organizations for people infected with AIDS. Individuals should write
NAPWA for information about membership which is $65 per year for HIV positive
individuals and $80 for others.
NAPWA
Membership includes bimonthly copies NAPWA publications like Medical Alert,
NAPWA Notes and the Active Voice as well as information about discounts
on medications. If you would like to join NAPWA, write them at NAPWA, 1413
K. Street, Washington DC 20005
If
you would like a copy of NAPWA's Medical Alert you can also request that,
A subscription to Medical Alert, is typically eight pages, features medications
and other topics is printed in English and Spanish and is free.
Copies
of some of the publications discussed in this article are available for
review by arrangement through Arrow at 734-4080.
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